Understanding Heart Disease Associated with Duchenne Muscular Dystrophy
Duchenne muscular dystrophy is the most common and severe form of muscular dystrophy. According to Nemours KidsHealth.org, it affects boys more often than girls. According to the Muscular Dystrophy Association, heart and respiratory muscle problems emerge in the teen years and can lead to serious complications. In terms of the heart, the issue at hand […]
New Hope in Fighting Duchenne Muscular Dystrophy
Muscular dystrophy is a genetic disorder that makes the muscles of the bodies of those affected get weaker over time. There’s no known cure, but there are treatments, and researchers continue to learn more about how to prevent and treat it. In this episode, we discuss one specific type of genetic disorder: Duchenne muscular dystrophy, […]
Heart of the Matter with Experts From Nemours Children’s Cardiac Center
SEGMENT 1: As children with congenital heart disease (CHD) become adults with adult congenital heart disease (ACHD), they continue to require specialized care and will need that care and monitoring for life. Find out why this is an important — and growing — area of specialty care. SEGMENT 2: It takes hours of preparation, planning […]
Babies in Crisis: Understanding Neonatal Abstinence (Part 4)
In the final episode of our four-part series “Hot Topics in Neonatology” we explore neonatal abstinence syndrome (NAS), a byproduct of prenatal drug exposure — one of the fastest growing public health problems in the world. In the U.S., the most recent data from the CDC indicate that the number of pregnant people with opioid-related diagnoses documented […]
Fragile Beginnings: Exploring NEC in Newborns (Part 3)
In the third of our four-part series “Hot Topics in Neonatology” we talk with health care providers who are on the frontlines working to prevent adverse outcomes and improve the quality of care for the most vulnerable babies. SEGMENT 1: Necrotizing enterocolitis (NEC) is the most common and serious intestinal disease among premature babies. It’s so dire that […]
Fluid Dynamics: What’s New in Treating EPRA (Part 2)
We continue our four-part series “Hot Topics in Neonatology” with Part 2 that explores the latest in neonatology-related research and education with experts from across the United States. SEGMENT 1: Amniotic fluid is the liquid that surrounds a baby during pregnancy, and it plays a key role in the development of the fetus. According to […]
Beyond the Mosquito: Exploring Zika’s Impact on Neuroblastoma
New research indicates that injecting neuroblastoma tumors with Zika virus can shrink or eliminate those tumors in mice, suggesting that the virus could someday serve as an effective cancer therapy. This is newly published in the peer-reviewed journal Cancer Research Communications, from the American Association for Cancer Research. On this week’s episode, we hear from the […]
Tiny Innovations, Big Impact
It’s a pediatric health care innovation episode of Well Beyond Medicine covering two new tools applicable to improving the health and health care experience of the smallest of babies. SEGMENT 1: It was a casual exchange between two colleagues that proved to be the point of conception for an infant positioning cradle, dubbed SmolTap, a simple […]
Breakthroughs in Sickle Cell Disease
You’ve probably heard the news: an FDA-approved treatment for sickle cell disease applying the gene-editing tool CRISPR is now available in the U.S. It’s a landmark moment in medical science on two fronts: the treatment, called Casgevey, is the first FDA-approved regimen to utilize CRISPR technology to treat any genetic disease. And it’s a huge […]
AI in Health Care: The Future (Part 3 of 3)
Artificial Intelligence (AI) will NOT replace the work of a skilled, trained, experienced human clinician. Yet AI, in all its formulations and manifestations, has the potential to bring revolutionary change and improved outcomes on a global scale. So, what’s next for AI in pediatric cardiology? Our AI experts weigh in. This episode was taped live […]
